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Registries for All Diseases named Sanofi US' Collaborate Activate Innovation Challenge winner
12-13-2012
by Kelsey Kaustinen  |  Email the author

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BRIDGEWATER, N.J.—Sanofi US has named Registries for All Diseases as the winner of the Collaborate Activate Innovation Challenge. As a result, Registries for All Diseases will be awarded $300,000 for the creation of a crowd-sourced, cross-disease registry to aid in accelerating translational research in over 1,000 diseases. The team is made up of partnering organizations Genetic Alliance, CFIDS Association of America, National Psoriasis Foundation and the Inflammatory Breast Cancer Research Foundation. All told, the Registries for All Diseases team plans to reach over 9,000 health organizations and 1,200 disease advocacy organizations.
 
"Collaborate Activate embodies our commitment to improving health outcomes for patients by uniting the advocacy community to accelerate innovation," Anne Whitaker, president of North America Pharmaceuticals at Sanofi US, said in a press release. "Registries for All Diseases exemplifies the collaborative nature of the challenge by creating a multi-tiered solution that captures both common data across all diseases and disease-specific data, showcasing the expertise of each partnering organization."
 
Collaborate Activate is one of the initiatives of Sanofi’s Partners in Patient Health, and was announced this May. The challenge called for two or more groups to collaborate in order to qualify and was intended to promote the sharing of complementary resources between partnering organizations. Sanofi US created the challenge in hopes that uniting patient advocates would lead to novel ideas that would not be possible otherwise.  
 
"Data can accelerate research and services, help us get better patient outcomes, and save money," Sharon Terry, president and CEO of Genetic Alliance, said in a statement. "But right now, this data is in silos and is not easily accessible to researchers. By creating a patient-centered research network that spans many diseases, people will be empowered to participate in their own health and can contribute data to advance the development of disease treatments."  
 
Registry for All Diseases was one of four teams that made it to the final phase of Collaborate Activate, and each finalist received $25,000 and mentorship from Sanofi team members and healthcare experts in order to fine-tune their ideas before presenting to the judging panel. Submissions were received from a total of 280 partnering organizations for new solutions in enabling patients to engage in their health.
 
"Creating a registry of patients is the single most valuable action a rare disease community can take," said David Meeker, MD, President and CEO of Genzyme, a Sanofi company. "The registry provides critical disease knowledge which makes that disease easier to study, increasing the probability a treatment can be developed. We congratulate the Registries for All Diseases team."  
 
The second place winner in the Collaborate Activate Innovation Challenge is 21st Century Brain Trust, consists of the Geoffrey Beene Gives Back Alzheimer's Initiative, the American Health Assistance Foundation and the USAgainstAlzheimer’s Network, and will receive $100,000 to develop its solution, a self-administered, clinical-grade cognitive testing app meant for the detection of asymptomatic Alzheimer’s disease. The app is intended to anticipate the onset of Alzheimer’s as well as establishing a dialogue focused on brain health rather than brain disease, prompting people to take control of their own cognitive well-being.    
 
 
SOURCE: Sanofi US press release
Code: E12131201

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